Help make CF stand for Cure Found
Find a cure for cystic fibrosis
Margo On The Move was created in 2017 when we learned our daughter would be born with cystic fibrosis, a genetic disease that currently has no cure. We have raised over $50,000 in support of the Cystic Fibrosis Foundation.
Being the parent of a child with cystic fibrosis is both painful and beautiful. Our community is filled with thousands of people with incredible stories, but too often those stories end in a battle being lost. Our family has already lost one relative to CF, so we know what’s at stake.
We know we have a lifelong mission that will not waver. We must find a cure for CF. We will not just hope, we will help lead the community find breakthrough treatments.
Fast facts
Margo has spent over 75,000 minutes doing chest physical therapy (CPT) - time she could spend being a kid
Margo has taken over 10,000 pills a year
Median life expectancy for a child born with CF is in the 50s, which is a vast improvement, but still unacceptable
Meet the team
Margo On The Move starts with the incredible supporters that have helped Meagan and Rhett in their journey of raising a child with CF.
Meagan has also detailed her story on cystic-fibrosis.com. Rhett and Meagan both volunteer and advocate on behalf of the CF Foundation and the CF community.
Stay informed
We love to send updates about our fundraising events and to thank our supporters. We promise not to blow up your inbox. You can also follow us on Instagram.
